With the Rare Bear Project, newly registered (paediatric) patients with rare diseases will now get to have a little comforting bunny, giraffe, zebra, unicorn or lion Rare Bear.
Each Rare Bear is unique in colour and made with love by ladies from the Kya Sands community in Johannesburg. They learn crochet skills during workshops held by the KyaKids Community Project. Each Rare Bear they crochet earns them R100 which enables them to support their families.
The Rare Bear Project is a joint initiative between Rare Diseases South Africa and KyaKids, a Community Project run by the Bryanston Bible Church. KyaKids undertakes programs that empower and uplift the kids, teenagers and parents of Section B, Kya Sands Informal Settlement in Johannesburg.
You can find out more on the Rare Bear Project on:
Who is Rare Diseases South Africa?
Rare Diseases South Africa advocates and facilitates engagement between those with the ability to prevent, intervene, treat and provide supportive care for those impacted by rare diseases.
Rare Diseases South Africa NPC is a registered NPO and PBO which aims to assist rare disease patients receive access to life-saving treatment and supportive care for improved quality of life.
How you can get involved
- Donate a Rare Bear.
- Become a Rare ACTIVist / volunteer your time and skills. Email firstname.lastname@example.org or visit this link for more information.
- Donate – remember, small change makes a big difference.
- #Ride4Rare in the Telkom 94.7 Cycle Challenge in 2018.